Sharing this book about a woman’s journey through life with a rare disease. We met in person about two months ago and clicked instantly, you don’t always get that in life. Check it out and share with the world, you never know who else has CMT!
Hi everyone and Merry Christmas:
After 2 ½ years of work, I can’t quite believe that I’ve finished my autobiography, CMT and Me: an intimate 75-year journey of love, loss and refusal to surrender to a disabling disease and that it’s up and out there. It took so long because I had almost 55 years of journals dating back to 1963 to go through, 103 CMT Newsletters to revisit and thousands of photographs and negatives from family members dating back to the late 1800s to view in order to illustrate the book properly. I not only write about my CMT but my life as a woman trying to find love and happiness and make a difference in the world because isn’t that what we all want, CMT or not?
In 330 pages, I bring to life my family and then what it was like for me to grow up in the 1940s coping…
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